Down Syndrome Info Packet

Down Syndrome Info Packet

Support for Families has produced the following information packet to assist families and professionals with their search for essential information and access to resources.  We hope that they are helpful and invite you to contact us with questions or comments.

Download the entire PDF packet in your preferred language below, or scroll down to find links to each section of this packet.

Down Syndrome Info Pack (English)


Section 1: Fact Sheets and Diagnosis

  • Down Syndrome Fact Sheet” by National Dissemination Center for Children with Disabilities (NICHCY), updated by Center for Parent Information and Resources (CPIR)
  • Language Guidelines“, under “New Parent’s Guide” section, by the National Down Syndrome Congress

Section 2: Strategies for Home and School

Section 3: How to Work with Professionals

Section 4: Resources

Let us know what you think! These resources do not endorse any services or programs listed, nor are they to be considered an exhaustive listing of organizations or websites. If you find any incorrect information, if you would like to offer feedback, or if you know of additional resources that may be helpful to include in the future, please contact us